Cancer Panel

[15:04] In Kenzo: Now at 3PM we have Cancer challenges and solutions with Stingray9798 Raymaker, Poppy Zabelin and Fayandria Foley
[15:04] DJ Earnshaw: Fayandria Foley

[15:04] Louise Later: OOPs they upgraded the site. Try this URL instead:

[15:04] Bjorlyn Loon: okay stingray please a few sentences?

[15:05] Bjorlyn Loon: keep talkin!

[15:05] In Kenzo: We hear you well here Stingray

[15:05] Bjorlyn Loon: yeah great

[15:05] Farm Gartenberg: can someone post the link to the Netsquared online events? some of this is live right?

[15:05] Bjorlyn Loon: Poppy? Please a few sentences

[15:05] Gentle Heron: can hear you way back here

[15:05] Bjorlyn Loon: great presentation Gentle!

[15:05] Gentle Heron: a bit of feedback Poppy

[15:05] Bjorlyn Loon: sounds good Poppy!

[15:05] In Kenzo: We are not streaming video at the moment but we are projecting you live in San Jose

[15:05] In Kenzo: This session will use SL Voice

[15:06] Bjorlyn Loon: she is on speakers Gentle, think it is the best we can do today for Poppy!

[15:06] Louise Later: www.virtualhelpinghands.org

[15:06] DJ Earnshaw: testing audio stingray then poppy

[15:06] In Kenzo: I will relay any questions from the San Jose room for those who are not inworld with us here

[15:06] Bjorlyn Loon: okay Fay, a few sentences?

[15:06] In Kenzo: yes we can!

[15:06] Bjorlyn Loon: perfect!

[15:07] In Kenzo: thank you Fayandria

[15:07] Bjorlyn Loon: lol

[15:07] Das Wade: LOL

[15:07] Gentle Heron: he he he

[15:07] Bjorlyn Loon: thanks Fay

[15:07] Gentle Heron: good for you Faye!!!

[15:07] Bjorlyn Loon: we are good to go, In Kenzo!

[15:07] Gentle Heron: I know

[15:07] In Kenzo: Thanks for coming out to join us today

[15:07] Gentle Heron: I was juggling them this past hour!

[15:07] In Kenzo: Let's get started......Stingray, we're all yours.

[15:07] DJ Earnshaw: Fay fiound the talk button

[15:07] Poppy Zabelin: waves at Rhiannon

[15:08] DJ Earnshaw: stingray will introoduce the panel

[15:08] DJ Earnshaw: all assoc with american cancer society

[15:08] DJ Earnshaw: fay event chair f relay for life in SL

[15:09] DJ Earnshaw: founded group poppy now runs

[15:09] In Kenzo: Yay survivors!

[15:09] Poppy Zabelin: yay fay!

[15:10] DJ Earnshaw: poppy volunteer prog director in sl

[15:11] DJ Earnshaw: organized health track in fl last year

[15:11] Das Wade: Wow wow wee waa Its a VERY NICE!!!

[15:11] DJ Earnshaw: poppy is a cancer survivor just as fay is

[15:11] Bjorlyn Loon: hurray for Poppy and Fay!

[15:12] DJ Earnshaw: fay from us, poppy from uk

[15:12] In Kenzo: Wow, volunteers in 13 countries for ACS!

[15:12] DJ Earnshaw: sting online content manager for ACS

[15:13] DJ Earnshaw: worked with ACS for 6 years

[15:13] Fayandria Foley: YES!

[15:13] In Kenzo: $214,000 last year raised!

[15:13] DJ Earnshaw: in second life alone

[15:14] DJ Earnshaw: fay is a survivor and a relayer

[15:14] Das Wade: woooohooo a brit

[15:14] In Kenzo: you all sound great, thank you panel! We will take questions after our panelists have time to share their stories.

[15:14] Sandy Bigboots: awesome!

[15:14] Das Wade: :-)

[15:15] DJ Earnshaw: poppy runs peer support group and survivor led groups where surviers share stories

[15:16] DJ Earnshaw: started with survivors group in 2007

[15:16] In Kenzo: ACS Island -- could someone post a SLURL or landmark for us?

[15:16] DJ Earnshaw: 100 members to 200 then 250 members today

[15:16] DJ Earnshaw: 50 since jan this year

[15:17] DJ Earnshaw: 9 to 12 people attend each session

[15:17] DJ Earnshaw: support each other on their cancer jurnies

[15:17] In Kenzo: congratulations wherever you are.

[15:18] DJ Earnshaw: share experiences celebrate completion of treatment or is declared free

[15:18] Sandy Bigboots: true that

[15:18] DJ Earnshaw: mourn when a member loses the battle

[15:18] DJ Earnshaw: helps people confined from home

[15:19] DJ Earnshaw: more than 1/2 people diagnosed with cancer will die of soething else

[15:20] cowgrl Crystal: That's exactly how I see it. The only reason that I'm here.

[15:20] DJ Earnshaw: sting we see te people behind the avatar and want to help the real people behind it

[15:21] DJ Earnshaw: fay what is relay for life

[15:21] In Kenzo: I have a question about access to SL from hospitals and if ACS or other groups have worked with hospitals to make SL available to those currently in treatment?

[15:21] DJ Earnshaw: fundraiser for ACS

[15:21] DJ Earnshaw: acs eans relay for life and vice versa

[15:22] DJ Earnshaw: relay leads the fundraising

[15:22] In Kenzo: How many people here have done the Relay for Life RL? It's a wonderful day of walking!

[15:22] Sandy Bigboots: I have

[15:22] In Kenzo: I always light a candle for lost loved ones

[15:23] cowgrl Crystal: I have

[15:23] DJ Earnshaw: teams go out and raise money, in SL as in RL

[15:23] DJ Earnshaw: provide them the tools to help tams raise money

[15:24] DJ Earnshaw: 12% of money to ACS international programs

[15:24] In Kenzo: ACS International Programs = SL focus since we are the international community ;-)

[15:24] DJ Earnshaw: One World One Hope is slogan for this year

[15:25] Stingray9798 Raymaker: over 5,000 relays in RL

[15:25] DJ Earnshaw: SL relay joins with RL relays.

[15:26] DJ Earnshaw: tie the world together

[15:26] In Kenzo: Can you tell us a bit about your fundraising goals for 2009 and how things are going for you so far? When is the SL relay this year?

[15:26] DJ Earnshaw: relay = hope = love

[15:27] DJ Earnshaw: sting relay now in 20 other countries

[15:28] DJ Earnshaw: relationship with organizations in other countries, got help for someone in france by putting in touch with local organization

[15:29] In Kenzo: It does seem to help that there's already an awareness of the "Relay for Life" event outside of SL

[15:30] DJ Earnshaw: sting you cant do bake sales or car wash in sl but you can sell clothing and proceeds to ACS

[15:30] In Kenzo: Two years ago someone threw me in a jail cell inworld....then I was to find a friend to "bail me out" for charity donation to ACS

[15:31] In Kenzo: so there's lots of activities that connect to the bigger relay event

[15:32] DJ Earnshaw: have not tried wrking in RL with hospitals

[15:32] Gentle Heron: The Ophoenix Foundation helps with access in hospitals and after patients return home.

[15:33] DJ Earnshaw: poppy describes one person accessing from hospital bed

[15:33] In Kenzo: very true Gentle, good point. I met with another org that wanted to do SL healing work from hospital beds and they were afraid that most hospitals would block SL.

[15:33] Gentle Heron: The problem is that most hospitals don't have network accessibility

[15:33] DJ Earnshaw: worth thinking about

[15:33] In Kenzo: "There is a world out there, we have to go out there and open it" -- this is an awesome quote Poppy, thank you.

[15:33] DJ Earnshaw: Local Hspital here in Tulsa does provide wifi

[15:34] DJ Earnshaw: sting suggests might consider such a program

[15:35] In Kenzo: wow, that's great fay

[15:35] DJ Earnshaw: fav describes a doctor asking if patient could continue while in treatment

[15:35] In Kenzo: WTG!

[15:35] You decline Jwheels Presents 05-27-09 from A group member named Jwheels Carver.

[15:36] DJ Earnshaw: relay goal $154K USD

[15:36] cowgrl Crystal: Fabulous!!

[15:36] In Kenzo: that's what has been raised so far

[15:36] In Kenzo: 54 days to go

[15:36] DJ Earnshaw: 54 days to relay day

[15:36] Stingray9798 Raymaker: $154K USD raised to date (not goal)

[15:36] DJ Earnshaw: sorry

[15:37] DJ Earnshaw: people want to participate

[15:37] DJ Earnshaw: take a swing at cancer

[15:37] In Kenzo: that's great fay!

[15:37] cowgrl Crystal: Have you talked to any of the places on SL that have Rodeo Events and see if they would do a Tough Enough To Wear Pink like they do in RL?

[15:37] In Kenzo: go for it, rez one if you'd like.

[15:38] cowgrl Crystal: I participate in that at all the rodeos that I go to on the West Coast, it is a huge deal and they all do it.

[15:38] Fayandria Foley: we do need to talk cowgirl!

[15:38] Stingray9798 Raymaker accepted your inventory offer.

[15:39] In Kenzo: Fayandria, a quick question: how many mini-events typically are part of one large Relay event? It sounds like you have a very comprehensive plan that grows each year.

[15:39] Sandy Bigboots: a penguin?

[15:42] Poppy Zabelin: nods

[15:42] In Kenzo: wise.

[15:42] Stingray9798 Raymaker: and ACS asks volunteers to refrain from offering medical advice

[15:43] Victoria Paule accepted your inventory offer.

[15:43] Poppy Zabelin: agrees with Glitter

[15:44] DJ Earnshaw: talked a person trough fear of needles etc

[15:44] In Kenzo: lymphoma?

[15:44] You decline NCI South Ground Classroom- Help, Hamnida (230, 26, 113) from A group member named Afon Shepherd.

[15:44] Stingray9798 Raymaker: lymphoma

[15:44] Stingray9798 Raymaker: general consensus from audience

[15:44] In Kenzo: she caught it early, great!

[15:44] Stingray9798 Raymaker smiles at Glitter!

[15:45] DJ Earnshaw: patient went to doctor and is now fine

[15:46] Glitteractica Cookie: The first group I visited inworld, before I launched the nonprofit commons was the cancer survivor's group

[15:46] In Kenzo: We have a few minutes left for our panelists.....please type your questions in chat for our panelists.

[15:46] DJ Earnshaw: ACS has screening guidlines, and when medical professional volunteers shares them with people the =y receive them better

[15:46] DJ Earnshaw: most cancers can be defeated if caught early

[15:47] Glitteractica Cookie: Thanks to all of you for saving my life and for providing so much support and information!

[15:47] DJ Earnshaw: screening guidlines, treatment options, etc available on ACS island

[15:47] Glitteractica Cookie: They don't even say the word for the first 30 mins

[15:47] Glitteractica Cookie: they say "a malignancy"

[15:48] Glitteractica Cookie: until you can really understnad it

[15:48] In Kenzo: There are a group of avatars interested in starting a marrow donation program for those struggling with Leukemia, etc....are there others at ACS interested in this campaign or has someone else from your organization talked about marrow donation?

[15:48] In Kenzo: go for it Stingray

[15:50] DJ Earnshaw: mission not changed too much in SL still rely mosely on colunteers

[15:50] DJ Earnshaw: sting's role is to support what volunterrs want to do

[15:52] DJ Earnshaw: road to recovery in RL drive paitent to and from treatment

[15:52] In Kenzo: An indirect network of support....

[15:52] Fayandria Foley: nodding head up and down - we have done that many times

[15:52] Poppy Zabelin: nodding

[15:52] DJ Earnshaw: can help people find people to get you the help you ned

[15:52] In Kenzo: happens here at NPC all the time too

[15:53] In Kenzo: I'd love to talk to you more about marrow donation after this session

[15:53] Gentle Heron: Question: Is ACS working with or planning to work with Faster Cures?

[15:53] Fayandria Foley: July 18 and 19

[15:53] Fayandria Foley: opening ceremony is at 12:00 PM SLT

[15:53] Fayandria Foley: we go for 24 hours

[15:54] In Kenzo: Excellent Fay, thank you!

[15:54] Glitteractica Cookie: Faster Cures is not really a cancer org in the same way

[15:54] Glitteractica Cookie: they put money twds research

[15:54] Glitteractica Cookie: to find faster cures

[15:54] DJ Earnshaw: tend not to work with other organizations, but try not to compete with them

[15:54] Glitteractica Cookie: but don't deal with patients like ACS does

[15:55] DJ Earnshaw: try not to step on toes of other organisations

[15:55] Glitteractica Cookie: FasterCures is a financial research engine

[15:55] Gentle Heron: We seem a lot closer to a cure for some cancers than for other problems. That's why I asked. It may be the low-hanging fruit, so to speak.

[15:56] Glitteractica Cookie: that works to get $$ directll for many diseases

[15:56] Glitteractica Cookie: The Leukemia and Lymphoma society gives patients (like me) a few thousand dollars

[15:56] Glitteractica Cookie: to patients

[15:56] Fayandria Foley: TY Rhiannon

[15:57] In Kenzo: and there are great support groups out there for various aspects of the treatment process, depending on what kind of cancer you are facing.

[15:57] In Kenzo: Like the Leukemia and Lymphoma example mentioned by Glitteractica.

[15:57] Poppy Zabelin: ACS helpline 1-800-2345

[15:57] In Kenzo: Share your URLs also!

[15:57] Stingray9798 Raymaker: 1-800-227-2345

[15:58] Stingray9798 Raymaker: Trained Cancer specialists 24 hours/7 days a week

[15:58] Stingray9798 Raymaker: cancer.org

[15:58] Stingray9798 Raymaker: RelayForLife.org

[15:58] DJ Earnshaw: fay - I dont care what group is on your name tag, I care that yu are suffering

[15:58] You decline CF University- Cystic Fibrosis U, BOOMER ISLAND (130, 127, 24) from A group member named Beverly Montgomery.

[15:59] In Kenzo: As we have seen throughout the panels today, support networks make all the difference

[15:59] Stingray9798 Raymaker: youtube.com/relayforlifedotorg

[15:59] Stingray9798 Raymaker: twitter.com/relayforlife

[15:59] In Kenzo: June 2nd: purple day!

[15:59] Stingray9798 Raymaker: June 1

[15:59] Poppy Zabelin: June 1

[15:59] Stingray9798 Raymaker: Paint SL PURPLE

[15:59] Stingray9798 Raymaker: we want your money on June 2, though

[15:59] DJ Earnshaw: color SL Purple on June 1 wear purple

[16:00] Stingray9798 Raymaker: make your walls purple

[16:00] In Kenzo: We are going to wrap up this panel in just a moment so let's take a moment to thank our panelists and guests throughout the day, and special thanks to the organizers, moderators and volunteers who made this Health Expo possible.

[16:00] Stingray9798 Raymaker: your sim purple

[16:00] In Kenzo: You have been tremendous speakers, thank you so much!

[16:00] DJ Earnshaw: show that you support people that have cancer

[16:00] In Kenzo: June 1st

[16:00] Stingray9798 Raymaker: June 1st

[16:00] Buffy Beale: yes great information, claps madly!

[16:00] Stingray9798 Raymaker: is paint SL purple

[16:00] A group member named Victoria Paule gave you Tip Jar Script Breakdown.

[16:00] Kali Idziak: Yes, Woot to our speakers. You've been such rockstars. I'll be nothing but purple on June 1!

[16:00] In Kenzo: Today our tag is #npslexpo -- is there a special tag for June 1 purple day?

[16:01] cowgrl Crystal: Wonderful information, thank you so much!!! Wildly Clapping!!!!

[16:01] In Kenzo: we'd love to post our photos!

[16:01] Kali Idziak: yes, we'd love to twitter about it

[16:01] Fayandria Foley: no special tag

[16:01] Sandy Bigboots: Thank you!!!

[16:01] Buffy Beale: claps madly again, wonderful

[16:01] Fayandria Foley: any tag can support

[16:01] Anika Pastorelli: yay - this has been great...ty

[16:02] Kali Idziak: and thanks to you In Kenzo!

[16:02] Gentle Heron: Thank you panelists.

[16:02] In Kenzo: SL voice is open.....chat away!

[16:02] Buffy Beale: yes great job to the organizers too

[16:02] Gentle Heron: And thanks to transcriptionist. It's a tough job!

[16:02] cowgrl Crystal: Thanks to all fo you for doing this

[16:02] Coughran Mayo: awesome panelists!

[16:02] Stingray9798 Raymaker: This has been one of the most well organized expos I've been involved with - great job to NPC

[16:02] Tara Haiku: Exceptional event today - kudos to all who made it happen!!

[16:02] Fayandria Foley: what a tough job

[16:02] Anika Pastorelli: /claps

[16:02] Poppy Zabelin: I've put out the Paint SL Purple poster next to Fay, in case you want to grab a notecard

[16:03] Farm Gartenberg: Is there any displays in the relay that highligh nutrition and food relations to cause and healing from cancer?

[16:03] Stingray9798 Raymaker: kudos to the Lindens

[16:03] Glitteractica Cookie: and Cisco

[16:03] Glitteractica Cookie: And TechSOup

[16:03] Kali Idziak: yes, thanks to Cisco Systems for making this room possible

[16:03] Kali Idziak: and providing enough bandwidth for almost 15 people in this room being in SL at the same time!!!

[16:03] Poppy Zabelin: Thanks to all of you for inviting us to participate here

[16:03] Buffy Beale: nice going Cisco!